Today I confess that I have been suffering from disease named "Sjögren syndrome (Sjogrne Syndrome)" - incurable disease.
As you may know that I have been suffering from many symptoms for these few years, and it was found by many of tests the other day.
I remember that so many people worried about me and my health, gave me e-mails, comments, and messages through facebook, thank you so much for your words of encouragement and thoughtfulness.
Now I'm OK, although have been suffering various symptoms everyday.
Before then I didn't know what is happening on my body, so I was confused and complained so much, but now I know what I have, how I am and why I'm tired and why I have pain.
Sometime, I will write about my health here on my blog, but in Japanese as you know that I'm not good enough to write difficult things in English. :p
Thank you again so much for your warm heart.
Just wanted to let you know about this.
Thanks, xx
このブログにも何度となく書いてきた体調不良。
もう何年になるだろう。
先日、9月からの長い長い検査の結果、ここ数年の体調不良の原因が判明しました。
病名は、「シェーグレン症候群」。膠原病の一種で難病でした。
ここに書こうかどうかは迷いました。
でも、書こうと決めたのは、少しでもこの病気で悩んでいらっしゃる方、この病気かもしれない方の参考になれば・・・と思ったから。
記録としても残したかったから。
そして何より、今まで体調不良の度、なかなかステッチも捗らなくなり、心配してメールやコメント、 facebook で、「体の調子は大丈夫？」と聞いて下さった方々へのご報告を兼ねて・・・
これから時々、体調のことや、この病名に辿り着くまでのこと・・・を書いていきたいと思います。
話としてはネガティブの部類に入ってしまうと思うので、病気の話など聞きたくない方はどうぞスルーして下さいね。
今までご心配下さり、ありがとうございました！
ブログの更新も気まぐれですが、これからもステッチを楽しんでいきたいと思います。
これからも、どうぞよろしく！
15 comments:
[[[Hugs]]] - will email you later Yuko!
I also have an autoimmune disease, though mine goes into remission more often than Sjogren Syndrome. Good luck dealing with it, and try to stay healthy!
My mother-in-law has Sjogren's and another autoimmune disease. Here Sjogren's manifests itself mostly with the lack of saliva and tears, and the occasional swollen salivary gland. Best of luck!
I work in a hospital Yuko and our surgeon tells everyone that green tea is the best thing to support and build a healthy immune system.
I'm so sorry to hear this news, I will pray for you and your little sweetie.
Take care my darling friend
Anita xxxxx
I too have an auto-immune disease. No fun at all, but I too am happy that I got it diagnosed. Take care.. sending good thoughts your way.
I am so sorry you have this difficult disease. A friend at work suffers with it also. She is now on medical leave and we hope she can have less stress and focus on her family. I hope you can be stress free too, but i know that is very hard to do. Good wishes sent your way.
I'm so sorry to hear about this news. I will think about you a lot and hope you'll manage the symptoms. (hugs)
Dear Yuko,
I'm sorry that you have such a disease, but on the other hand is very good to have a diagnosis, know the name of the syndrom and learn how you can fight against it. I'm sure you'll manage with it and send my best wishes to you.
Love from Spain,
Alicia
体調不良、原因がわからないとどんどん悪い方へ考えが傾いてしまって気持ちも追いつめられてしまいますね。
こうして漠然とした不安から解放され、原因がわかって薬でコントロールできるようになったというのは（こういういい方は正しいのかどうかわかりませんが）よかったですね。
長いお付き合いになるのでお辛い時もあると思いますが、お大事になさってください。
あの形のピンクッション、BBDのステッチデザインでもありましたよね(^^ゞ
作り方、とても簡単ですので是非作ってみてください。
pdfファイルのリンクを先日の記事の一番最後のネコアイコンに貼っておいたのでクリックしてみてくださいね(#^.^#)
にゃんきち
Dear Anita,
Thank you so much for your warm heart.
"Green Tea" is a Japanese traditional tea!!
I usually have brown Japanese tea, but will have green tea, too!!
Thanks for your good advice.
xxoo
Yuko
Dear Alicia,
Thank you so much for your thoughtfulness.
Yes, you're right, now I know the name of disease and doctor gave me medicines for this syndrome, so it's better than before!!
I was weak before because I didn't know how I am, but I'm sure I can fight against this, especially for my sweetie!
Thanks,
xxoo
Yuko
にゃんきちさん、
コメントありがとうございます！
そうなんです、何年も何年も原因が分からずにいて、「病は気から！」と周りから言われ続けてきたので、病名が分かって対処法が分かったので良かったです。
薬ももらえて、少し楽になりました！
「菊もなか」、pdf貼って下さったのですね！
今から早速伺います！！
頑張って作れるかな？！
また、出来たら見て下さいね！
at last you have a diagnosis,,that part is good... now you have medication , specific medication..a lot of hugs for you.
Dear Doris,
Thank yoy always for your comment and encouragement!
Yes, now it's better than before because I have medicines for them.
Take great care and thanks again,
Yuko xx
I'm so sorry that you're going through this, but glad you've at least found out what's wrong with you. Hopefully having some answers will ease your stress just a little bit. Thinking about you and sending good thoughts your way!
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